The dynamics of patient organizations in Europe
Patient organizations today play a major role in the scientific, economic and political arenas. They have become the quasi-obliged partners of researchers, industrialists and political authorities. This book investigates this quite recent configuration by offering an in-depth exploration of three thematic issues: To what social and political stakes are patient organizations confronted as regards the transformation, production, circulation, and governance of knowledge? The involvement of patien...
Éditeur : Presses des Mines
Lieu d’édition : Paris
Publication sur OpenEdition Books : 22 mai 2013
ISBN numérique : 978-2-35671-096-3
DOI : 10.4000/books.pressesmines.1577
Collection : Sciences sociales
Année d’édition : 2008
ISBN (Édition imprimée) : 978-2-35671-007-9
Nombre de pages : 252
Madeleine Akrich, João Nunes et Vololona Rabeharisoa
Conclusions
Patient organizations today play a major role in the scientific, economic and political arenas. They have become the quasi-obliged partners of researchers, industrialists and political authorities. This book investigates this quite recent configuration by offering an in-depth exploration of three thematic issues: To what social and political stakes are patient organizations confronted as regards the transformation, production, circulation, and governance of knowledge? The involvement of patient organizations in the economic world is acknowledged as confrontational, especially when it comes to relationships with the pharmaceutical industry. To what extent do opposition, "instrumentalization", or cooperation constitute relevant models if we are to account for the multifaceted relationships between patient organizations and economic actors? Patient organisations are the structuring actors of networks, coalitions, and collectives throughout Europe. What social and political concerns arise from these particular forms of collective action on a national or European scale? Each question is first examined through an academic and grey literature review. Then the emerging topics and critical issues are identified and discussed, drawing upon exchanges of experiences, viewpoints, and reflections between actors involved in patients' and users' movements and social scientists.
The dynamics of patient organizations in Europe raises a number of questions of interest for all actors from the health system, as well as for social scientists. This book intends to contribute to the reflection on further research agenda setting and policy-making.
Le texte seul est utilisable sous licence Licence OpenEdition Books. Les autres éléments (illustrations, fichiers annexes importés) sont « Tous droits réservés », sauf mention contraire.
Le Design : l’objet dans l’usage
La relation objet-usage-usager dans le travail de trois agences
Sophie Dubuisson et Antoine Hennion
1996
La nature a-t-elle un prix ?
Critique de l’évaluation monétaire des biens non-marchands
Martin Angel
1998
Reconnaissance et usages d’Internet
Une sociologie critique des pratiques de l’informatique connectée
Fabien Granjon
2012
Sur la piste environnementale
Menaces sanitaires et mobilisations profanes
Madeleine Akrich, Yannick Barthe et Catherine Rémy (éd.)
2010
Communiquer à l’ère numérique
Regards croisés sur la sociologie des usages
Julie Denouël et Fabien Granjon (dir.)
2011
Le vin et l’environnement
Faire compter la différence
Geneviève Teil, Sandrine Barrey, Pierre Floux et al.
2011
