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A Quarter-Century of Normalization and Social Role Valorization

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Robert J. Flynn
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Raymond Lemay

Part 9: Appendix

A comprehensive bibliography on Normalization, Social Role Valorization, PASS, and PASSING, 1969-1999

Carole St-Denis et Robert J. Flynn

Texte intégral

1This comprehensive bibliography includes approximately 800 items. We created it as a working tool for the reader interested in the extensive literature on Normalization, Social Role Valorization, PASS, and PASSING. The bibliography covers the literature in English and French for a 30-year period, beginning in 1969, the year of publication of Kugel and Wolfensberger’s classic monograph, Changing Patterns in Residential Services for the Mentally Retarded, in which Nirje’s celebrated article on Normalization appeared, and ending in early 1999, when work on the present volume was completed. The bibliography is as complete as we could make it, and incorporates the 241 items from Nitsch, Armour, and Flynn’s earlier bibliography on Normalization and PASS (see Flynn and Nitsch’s [1980] volume, pp. 395-409). This updated and greatly expanded bibliography is more than three times as long as the earlier one. Each item is identified as pertaining primarily to Normalization (N), Social Role Valorization (SRV), PASS (PS), PASSING (PG), or some combination thereof.

2To be included, an item had to make more than a fleeting reference to or have more than a peripheral relationship with one or more of the following terms: Normalization, Social Role Valorization, Program Analysis of Service Systems (PASS), and Program Analysis of Service Systems’ Implementation of Normalization Goals (PASSING). We limited our systematic search of the literature to references published in English or French, although we did include a few items coming to our attention that were in languages other than English or French. In deciding to include an item, we made no judgment about its quality or importance.

3We thank Paul Jenkins, Kristjana Kristiansen, Jo Massarelli, Susan Thomas, Tony Wainwright, and Wolf Wolfensberger for their contributions to the bibliography. We would also appreciate being made aware of any omissions.

Bibliographie

COMPREHENSIVE BIBLIOGRAPHY

Aanes, D., & Haagenson, L. (1978). Normalization: Attention to a conceptual disaster. Mental Retardation, 16, 55-56. (N)

Abeson, A., Burgdorf, R. L., Casey, P. J., Kunz, J. W., & McNeil, W. (1974). Access to opportunity. In N. Hobbs (Ed.), Issues in the classification of children: A sourcebook on categories, labels, and their consequences (Vol. 2). San Francisco: Jossey-Bass. (N) Alaszewski, A., & Ong, B. N. (1990). Normalisation in practice: Residential care for children with a profound mental handicap. London: Routledge. (N)

American Alliance for Health, Physical educationandRecreation. (1977). Integrating persons with handicapping conditions into regular physical education programs: A bibliography and literature analysis (Rev. ed.). Washington, DC: Author. (N)

Amundson, R., Dyer, L., Henderson, W., & Rathbone-McCuan, E. (1991). Vacation therapy: A community Normalization experience for persons with long-term mental illness. Psychosocial Rehabilitation Journal, 14(3), 81-91. (N)

Anderson, R. M., Greer, J. G„ & Dietrich, W. L. (1976). Overview and perspectives. In R. M. Anderson, & J. G. Greer (Eds.), Educating the severely and profoundly retarded. Baltimore: University Park Press. (N)

Anderton, J. M., Elfert, H., & Lai, M. (1989). Behavior-modification and Normalization in conflict. Sociology of Health & Illness, 11, 253-278. (N)

Andrews, R. J., & Berry, P. B. (1978). The evaluation of services for the handicapped promoting community living. International Journal of Rehabilitation Research, 1, 451-461. (PS)

Angers, M. (1992). “Created” communities and “natural” community. Special issue: The clubhouse model. Psychosocial Rehabilitation Journal, 16, 117-123. (N)

Anonymous. (1975). PASS. Currents, 2(3), 5-8. (PS)

Anonymous. (1982). Normalization or exclusion: The chances to find jobs and persons leaving special schools. Mid-American Review of Sociology, 7, 139-170. (N)

Anonymous. (1983). Give Normalisation a chance. Mental Retardation, 21, 76. (N)

Anonymous. (1994). Association to promote the principles of Social Role Valorisation. Training & Evaluation for Change Newsletter, 21. Kent Town, SA. (SRV)

Anonymous. (1994). Review of the conference, “25 years of Normalization, Social Role Valorization, and social integration: A retrospective and prospective view.” International Social Role Valorization Journal, 1(2), 39-42. (N, SRV)

Anstey, T. J., & Gaskin, M. (1985). Service providers’ understanding of the concept of Normalization. Australia and New Zealand Journal of Developmental Disabilities, 11, 91-95. (N)

Ashman, A. F., & Suttie, J. (1995). Changing existing services for older people with an intellectual disability. Australia & New Zealand Journal of Developmental Disabilities, 20, 189-204. (N)

Association for Advocacy for Change Through Training. Changing lives, changing communities. Carlton South, Victoria, Australia: Author. (N, SRV)

Bailey, D„ & McWilliam, R. (1990). Normalizing early intervention. Topics in Early Childhood Special Education, 10(2), 33-47. (N)

Baker, B. L., Seltzer, G. B., & Seltzer, M. M. (1977). As close as possible: Community residences for retarded adults. Boston: Little, Brown and Company. (N)

Baker, F. M., Baker, R. J., & McDaniel, R. S. (1975). Denormalizing practices in rehabilitation facilities. Rehabilitation Literature, 36(4), 112-115, 119. (N)

Baldwin, S. (1985). Models of service delivery: An assessment of some applications and implications for people who are mentally retarded. Mental Retardation, 23(1), 6-12. (N)

Baldwin, S. (1985). Sheep in wolf’s clothing: Impact of Normalisation teaching on human services and service providers. International Journal of Rehabilitation Research, 8(2), 131-142. (N)

Baldwin, S. (1989). Applied behaviour analysis and Normalisation: New carts for old horses? A commentary. Behavioural Psychotherapy, 17, 305-308. (N)

Baldwin, S. (1989). Applied behaviour analysis and Normalization: Reason, rhetoric and rationality. Behavioural Psychotherapy, 17, 314-315. (N)

Baldwin, S., & Hattersley, J. (1991). Mental handicap: Social science perspectives. London: Tavistock/Routledge. (N)

Baldwin, S., & Stowers, C. (1987, Spring). Normalisation and elderly persons: In whose best interests? American Archives of Rehabilitation Therapy, 34-42. (N)

Bank-Mikkelsen, N. E. (1969). A metropolitan area in Denmark: Copenhagen. In R. Kugel & W. Wolfensberger (Eds.), Changing patterns in residential services for the mentally retarded. Washington, D.C.: President’s Committee on Mental Retardation. (N)

Bank-Mikkelsen, N. E. (1976). Denmark. In R. Kugel & A. Shearer (Eds.), Changing patterns in residential services for the mentally retarded (Rev. ed.). (DHEW No. [OHD] 76-21015.) Washington, DC: President’s Committee on Mental Retardation. (N)

Bank-Mikkelsen, N. E. (1977). Right to normal living conditions. Enlightenment (Pennsylvania Association for Retarded Citizens), 1(3), 4-8. (N)

Bank-Mikkelsen, N. E. (1978). Misconceptions of the principle of Normalization. In FLASH on the service for the mentally retarded, III. Publication No. 44. Copenhagen: The Personnel Training School. (N)

Bank-Mikkelsen, N. E. (1980). Denmark. In R. J. Flynn & K. E. Nitsch (Eds.), Normalization, social integration, and community services (pp. 51-70). Baltimore: University Park Press. (N)

Bano, A., Crosskill, D., Patel, R., Rashman, L., & Shah, R. (1993). Dark shadows on a white wall: A black perspective on Wolfensberger’s theory of Normalisation. In A. Bano, D. Crosskill, R. Patel, L. Rashman, & R. Shah, Improving practice with people with learning disabilities. London: Central Council for Education and Training in Social Work. (N)

Barnett, B. H. (1979). Communitization and the measured message of normal behavior. In R. L. York & E. Edgar (Eds.), Teaching the severely handicapped (Vol. IV). Seattle, WA: American Association for the Education of the Severely and Profoundly Handicapped. (N)

Barney, W. D. (1977). “Normalisation”: What does it mean and how does it work? Intellectual Handicap Review (New Zealand), 16(4), 17-25. (N)

Baroff, G. S. (1974). Mental retardation: Nature, cause, and management. Washington, DC: Hemisphere Publishing Co. (N)

Bass, M.S. (1978). Surgical contraception: A key to Normalization and prevention. Mental Retardation, 16(6), 399-404. (N)

Bates, P., & Pancsofar, E. (1983). Project EARN (Employment and Rehabilitation = Normalization): A competitive employment training program for severely disabled youth in the public schools. British Journal of Mental Subnormality, 29(57, Pt. 2), 97-103. (N)

Bayes, K. A. (1969). British architect’s view on Normalization. London: Design Research Unit. (Mimeographed) (N)

Bayley, M. (1991). Normalisation or “Social Role Valorization”: An adequate philosophy? In S. Baldwin & J. Hattersley (Eds.), Mental handicap: Social science perspectives. London: Tavistock/Routledge. (N, SRV)

Beckey, D. M. (1982). Normalization’s theoretical status and future residential models. Australia and New Zealand Journal of Developmental Disabilities, 8(2), 97-104. (N)

Beckman-Brindley, S., & Tavormina, J. B. (1978). Normalization: A new look. Education and Training of the Mentally Retarded, 73(1), 66-68. (N)

Bellamy, G. T., Newton, J. S„ Lebaron, N. M., & Horner, R. H. (1990). Quality of life and lifestyle outcome: A challenge for residential programs. In R. L. Schalock & M. J. Begab (Eds.), Quality of life: Perspectives and issues (pp. 127-137). Washington, DC: American Association on Mental Retardation. (N)

Bercovici, S. M. (1983). Barriers to Normalization. Baltimore: University Park Press. (N)

Bernstein, G. S., & Karan, O. C. (1979). Obstacles to vocational Normalization for the developmentally disabled. Rehabilitation Literature, 40(3), 66-71. (N)

Berry, P. B., Andrews, R. J., & Elkins, J. (1977). An evaluative study of educational, vocational and residential programs for the moderately to severely mentally handicapped in three states. St. Lucia, Queensland, Australia: University of Queensland, Fred and Eleanor Schonell Educational Research Centre. (PS)

Biklen, D. (1979). The case for deinstitutionalization. Social Policy, 10(1), 48-54. (N)

Birlen, D., & Dybwad, G. (1979). A perspective on the social and cultural history of severely and profoundly retarded persons. In S. G. Sellars (Ed.), Strategies for increasing career education and opportunities for severely mentally retarded perons. College Park: University of Maryland, Department of Industrial Education, Center of Rehabilitation & Manpower Services. (N)

Billimoria, R. B. (1993). Principle and practice of Normalization: Experiences from Sweden and application to India. Uppsala: Uppsala University, Centre for Handicap Research. (N)

Bissonnier, H. (1977). Current developments in the field of mental retardation: A tentative assessment and critical study. International Child Welfare Review, 32. (N)

Bjaanes, A. T., & Butler, E. W. (1974). Environmental variation in community care facilities for mentally retarded persons. American Journal of Mental Deficiency, 78(4), 429-439. (N)

Blake, R. (1986). Normalisation and boarding homes: An examination of paradoxes. Social Work in Health Care, 11(2), 75-86. (N)

Blanchet, A. (1999). The impact of Normalization and Social Role Valorization in Canada. In R. J. Flynn & R. A. Lemay (Eds.), A quarter-century of Normalization and Social Role Valorization: Evolution and impact. Ottawa, ON: University of Ottawa Press. (N, SRV)

Blaney, B. C. (1992). Commentary. In S. Moss (Ed.), Aging and developmental disabilities: Perspectves from nine countries (pp. 93-96). International Exchange of Experts and Information in Rehabilitation (IEEIR) Monograph No. 52. Durham, NH: University of New Hampshire, Institute on Disability. (N, SRV)

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Blatt, B. (1987). The community imperative and human values. In R. F. Antonak & J. A. Mulick (Eds.), The community imperative revisited. Transitions in mental retardation, Vol. 3 (pp. 237-246). Norwood, NJ: Ablex Publishing Corp. (N)

Bloom, B. (1974). “Normalization” and educational policies. Toronto, ON: National Institute on Mental Retardation. (Paper prepared for the Saskatchewan Association for the Mentally Retarded) (N)

Blunden, R. (1988). Mental Handicap: The feasibility of Normalisation—An introduction. In E. Karas (Ed.), Current Issues in Clinical Psychology. New York & London: Plenum Press. (N)

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Booth, M. C. (1989). Normalization in non-profit small group homes for mentally retarded adults. Unpublished doctoral dissertation, University of California, Los Angeles. (N)

Borthwick-Duffy, S. A. (1989). Quality of life: The residential environment. In W. E. Kiernan & R. L. Schalock (Eds.), Economics, industry, and disability: A look ahead (pp. 351-363). Baltimore: Paul H. Brookes. (N)

Boschen, K. A., & Krane, N. (1992). A history of independent living in Canada. Canadian Journal of Rehabilitation, 6(2), 79-88. (N)

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Boucherat, A. (1987). Normalisation in mental handicap: Acceptance without question? Bulletin of the Royal College of Psychiatrists, 11, 423-425. (N)

Boutet, M., Hurteau, M., Lachappelle, R., & Lalonde, M. (1993). La mise en marche de l’approche communautaire dans le cadre de l’intégration sociale des personnes présentant une déficience intellectuelle: Projet-pilote. In S. Ionescu, G. Magerotte, W. Pilon, &R. Salbreux (Eds.), L’intégration des personnes présentant une déficience intellectuelle (pp. 295-297). Actes du IIIe congrès de l’Association Internationale de Recherche scientifique en faveur des personnes Handicapées Mentales. Trois-Rivières, QC: Université du Québec à Trois-Rivières et AIRHM. (SRV)

Bowd, A. D. (1988). To provide a home environment: Normalization of residential services for developmentally handicapped persons in the Lakehead Region. Thunder Bay, ON: Lakehead Association for Community Living. (N)

Bowd, A. D. (1989). Client satisfaction and Normalization of residential services for persons with developmental handicaps. Canadian Journal of Community Mental Health, 8(1), 63-73. (N)

Boyd, W., & Hartnett, F. (1975). Normalization and its implications for recreation services. Journal of Leisurability, 2(1), 22-27. (N)

Bradley, V. J. (1978). Deinstitutionalization of developmentally disabled persons: A conceptual analysis and guide. Baltimore: University Park Press. (N)

Bradley, V. J. (1994). Evolution of a new service paradigm. In V. J. Bradley, J. W. Ashbaugh, & B. C. Blaney (Eds.), Creating individual supports for people with developmental disabilities: A mandate for change at many levels (pp. 11-32). Baltimore: Paul H. Brookes. (N)

Brady, M. P., & Cunningham, J. (1985). Living and learning in segregated environments: An ethnography of Normalization outcomes. Education and Training of the Mentally Retarded, 20, 241-252. (N)

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Brandon, D. (1991). Increasing value: The implications of the principle of Normalization for mental illness services. Manchester, England: Salford University College. (N)

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Branson, J., & Miller, D. B. (1991). Normalisation and the socio-cultural construction of “disabilities”: Towards an understanding of schooling, discipline and the integration programme. In M. Lovegrove & R. Lewis (Eds.), Classroom discipline. Melbourne: Longman Cheshire. (N)

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Bratt, A., & Johnston, R. (1989). “Changes in life style for young adults with profound handicaps”: Reply. Mental Handicap Research, 2, 107-108. (PG)

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Briton, J. (1977). Behavior modification, Normalization and person-orientedness. Australian Journal of Mental Retardation, 4(8), 4-12. (N)

Bronston, W. G. (1976). Concepts and theory of Normalization. In R. Koch & J. C. Dobson (Eds.), The mentally retarded child and his family: A multidisciplinary handbook (Rev. ed.). New York: Brunner/Mazel. (N)

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Brown, H. (1992). What price theory if you cannot afford the busfare: Normalisation and leisure services for people with learning disabilities. Health and Social Care in the Community, 2, 153-159. (N)

Brown, H. (1994). An ordinary sexual life? A review of the Normalisation principle as it applies to the sexual options of people with learning disabilities. Disability & Society, 9(2), 123-144. (N)

Brown, H., & Alcoe, J. (1987). Lifestyles: An approach to training staff in Normalisation principles. Social Work Education, 6(3), 21-22. (N)

Brown, H., & Smith, H. (1989). Whose “ordinary life” is it anyway: A feminist critique of the Normalisation principle. Disability, Handicap and Society, 4, 105-118. (N)

Brown, H., & Smith, H. (1992). Assertion, not assimilation: A feminist perspective on the Normalisation principle. In H. Brown & H. Smith (Eds.), Normalisation: A reader for the nineties (pp. 149-171). London & New York: Tavistock/Routledge. (N)

Brown, H., & Smith, H. (1992). Introduction. In H. Brown & H. Smith (Eds.), Normalisation: A reader for the nineties (pp. xiv-xxii). London & New York: Routledge. (N)

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Brown, J. L. (1973). Can we describe how we normalize the life style of the deviant child? Involvement, 6(1), 1-7. (N)

Brown, L., Thomas, M. D., Allen, D. G., & Gilchrist, L. D. (1994). Mental health reform: Client and family member perspectives. Education and Program Planning, 17, 81-92. (N)

Brown, R. L. (1987). Rehabilitation in Australia: A look at someone else’s backyard. Australia and New Zealand Journal of Developmental Disabilities, 13(3), 127-132. (N)

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Buntinx, W. (n.d.). Dutch translation of PASS 3. Utrecht: Bishop Bekkers Institute. (Mimeographed) (PS)

Buntinx, W. (1979). [Reflections on the measurement of the quality of service delivery.] Ruit, 18. (In Dutch) (PS)

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Burchard, S. N., Hasazi, J. S., Gordon, L. R., & Yoe, J. (1991). An examination of lifestyle and adjustment in three community residential alternatives. Research in Developmental Disabilities, 12, 127-142. (N)

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Carson, J., McAlpin, B., Glynn, T., & Shaw, E. (1989). The role of Normalisation in the community care of the mentally ill. Unpublished paper, Claybury Hospital. (N)

Carson, S. (1992). Normalisation, needs and schools. Educational Psychology in Practice, 7, 216-222. (N)

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Chappell, A. L. (1992). Towards a sociological critique of the Normalization principle. Disability, Handicap and Society, 7(1), 35-51. (N)

Chappell, A. L. (1994). A question of friendship: Community care and the relationships of people with learning difficulties. Disability and Society, 9, 419-434. (N)

Chicoine, F. (1979). Quelques réflexions sur la Normalisation. Déficience Mentale/Mental Retardation, 29(3), 49-51. (N)

Clark, H. B., etal. (1983). Environmental and architectural planning for community-based, residential treatment facilities. Journal of Rehabilitation Administration, 7(1), 28-33. (N)

Cleland, C. C., & Sluyter, G. V. (1973). The heterobedfast ward: A model for translating “Normalization” into practice. Mental Retardation, 11(1), 44-46. (N)

Clifford, L. X. (1984). A reaction to “Social Role Valorization.” Mental Retardation, 22, 147. (SRV)

Clifford, P. (1987, April). Why I haven’t joined the Normies: Some doubts about Normalisation. South East Thames Rehabilitation Interest Group Newsletter. (N)

Cnaan, R. A., EtAl. (1988). Psychosocial rehabilitation: Toward a definition. Psychosocial Rehabilitation Journal, 11,61-77. (N)

Cocks, E. (1985). Roadblocks to appropriate services for persons with an intellectual disability in Australia. Paper presented at the 1994 conference of the Australian Group for the Scientific Study of Mental Deficiency, Melbourne, Australia. (N)

Cocks, E. (1998). Evaluating the quality of residential services for people with disabilities using program analysis of service systems’ implementation of Normalization goals (Passing). Asia & Pacific Journal on Disability, 1. (SRV, PG)

Cohen, C. (1978). An eclectic approach to counseling the retarded. Journal of Applied Rehabilitation Counseling, 9(2), 17-20. (N)

Cohen, E. S. (1988). The elderly mystique: Constraints on the autonomy of the elderly with disabilities. Gerontologist, 24-31. (N)

Cohen, S. (1977). Normalization and the right to a better life. In S. Cohen, Special people: A brighter future for everyone with physical, mental, and emotional disabilities. Englewood Cliffs, NJ: Prentice-Hall. (N)

Condeluci, A., & Gretz-Lasky, S. (1987). Social Role Valorization: A model for community re-entry. Journal of Head Trauma Rehabilitation, 2, 49-56. (SRV)

Congdon, D. M. (1974). Croak of incompetence: Exhibitionism. Mental Retardation, 12. (N)

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Conroy, J. W., Efthimiou, & Lemanowicz, J. (1982). A matched comparison of the developmental growth of deinstitutionalized mentally retarded clients. American Journal of Mental Deficiency, 86, 581-587. (PS) Conway, A. (1976). Normalization: A beginning without an end. Education and Training of the Mentally Retarded, 11(4), 341-345. (See also McDowell, F. [1977]. [Editor’s] Correction. Education and Training of the Mentally Retarded, 12[2], 73.) (N)

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Wolfensberger, W. (1991). La Valorizzazione Del Ruolo Sociale: Una breve introduzione al concetto di valorizzazione del ruolo sociale inteso come concetto prioritario per la strutturazione dei servizi alle persone (M. Costantino & A. Domina, Trans.). Geneva, Switzerland: Éditions des Deux Continents. (SRV)

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Wolfensberger, W. (1992). Deinstitutionalization policy: How it is made, by whom and why. Clinical Psychology Forum, 39, 7-11. (SRV)

Wolfensberger, W. (1992). A guideline on protecting the health and lives of patients in hospitals, especially if the patient is a member of a societally devalued class. Syracuse, NY: Syracuse University, Training Institute on Human Service Planning, and Change Agentry. (SRV)

Wolfensberger, W. (1992). The “if this, then that” formulation in SRV decision-making. Voice of Social Role Valorisation in Britain (CMHERA), 1, 4-7. (SRV)

Wolfensberger, W. (1992). Response to Eric Emerson. Voice of Social Role Valorisation in Britain (CMHERA), 3, 3-6. (SRV)

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Wolfensberger, W. (1994). Review of Shaddock & Zilbers “Current service ideologies.” International Social Role Valorization Journal, 7(1), 49-50. (SRV)

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Wolfensberger, W. (1996). Recherche, empirisme et le principe de Normalisation. Revue internationale de la valorisation des rôles sociaux, 2(2), 22-28. (N)

Wolfensberger, W. (1996). Reply to John O’Brien’s “Nobody outruns the trickster: A brief note on the meaning of the word ‘Valorization.’” International Social Role Valorization Journal, 2(1), 16-20. (SRV)

Wolfensberger, W. (1996). Review of “Normalization and deinstitutionalization of mentally retarded individuals: Controversy and facts.” International Social Role Valorization Journal, 2(1), 38-39. (N, SRV)

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Auteurs

Ph.D. candidate, School of Psychology, University of Ottawa, Ottawa, ON, Canada.

Ph.D., Professor, Community Services Research Unit, School of Psychology, University of Ottawa, Ottawa, ON, Canada

© Les Presses de l’Université d’Ottawa | University of Ottawa Press, 1999

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